Posts

My 2025 Recap - a difficult but promising transitionary year

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2025 has been my first year in a long while that is worth recapping! Or I’ve been able to. Major improvements to my ME/CFS, taking me back up towards where I was at the peak of my 2013 remission. With a new understanding of why that tapered off (in short, deficiencies)… But simultaneously, new challenges and self-care have soaked up most of the gains. So it’s been an ongoing scramble! I’ve made a somewhat detailed summary, below, for those with time to read. (And let me know what you’ve been up to, too!) Otherwise, please enjoy a selection of my favourite nature pics I’ve been taking most days this year, on my return to daily walks (and later bike rides), rediscovering our neighbourhood. Google photos album , super-cut of 30 from >500 of the best daily nature pics I've posted  this year. Health Improvements: I’ve been carefully tracking my daily health and self-treatment changes in a huge spreadsheet for several years (my memory is still shot). Since intensifying my e...

ME/CFS Improvement Metrics - 2 Years of Tracker Data Graphed (Part 1)

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[ Blog post copy for these social media threads: Twitter ( ThreadReader ), Bluesky , Mastodon . ] 1/ Overview of my #MEcfs improvements quantified! #PartialRemission #MEcfsEgress Context: I've had moderate ME for a decade, gradual onset worsening CFS since teens. tl;dr - major improvement contributors: • BornFree minerals (half into stage 1). • Environmental/mold avoidance. Over 2 years of data. Productivity (left vertical axis) and steps (right vertical axis) graphed together with basic annotations. Steps shoot up from a nadir of under 1k per day to around 3k at the start of this year, where they've plateaued. Pedometer is an app on my phone (I take everywhere) that is my most accurate step count. "Productivity" is (for me) synonymous with having cognitive/executive function (my biggest problem) and a lack of physical malaise. Example scoring: 1 productivity = cooking for myself double dinner (minimum for ongoing survival, with food intolerances). +1 (so 2 in total)...

New Blog for Health!

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I've been contemplating splitting off my few health related posts from my main sci-tech & culture Blogger . That spans back to 2006 and is a pain to post in, due to a heavily customised layout causing glitches. Also, it's best to stay focused on one topic in this (late) content algorithm age. Linktree for my social media accounts, including Twitter, which is heavily on this topic, for the last few years (taking my full focus). I've also made a Google sheet listing direct links to my biggest, best and more interesting Tweet threads and (Phoenix Rising, etc) forum posts, related to ME/CFS. New blog's banner image - stylised crop from my health tracking spreadsheet visualising an unexpected post-Covid health improvement, in 2023.

Abridged narrative of my life, failed studies and ill health symptoms

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In honour of hitting the big four-oh, overnight, I felt like turning this excessively long Reddit comment of mine (in r/AutisticWithADHD) into an impromptu blog post. Maybe it could kick off writing up more health history, for useful proposes... December 1987 (Age 4) with Stickle Brick robots. I hit all the normal infant development milestones. But was a late starter in some academic respects; last in class to move from pencil to pen, at the start of middle school . But by the end I was getting top grades and passed the entrance exam for our selective grammar (high) school. Where I was basically on mostly As until age 16, except for chemistry and languages (dyslexia spoiler warning). Starting secondary school. Over the two years of sixth form , I really started struggling with DSPD (delayed sleep phase). To get to school on time, be exhausted when getting home and then still not sleeping until late. Also with executive function to do homework and revise maths, in particular. The first...